Traveling with Disability…

Travelling is always a stressful thing, with all the security loops to jump through, and the general concerns of making sure you have everything. This is only made worse when you have a chronic illness or disability. There is so much extra stuff that you have to remember when you are fighting a chronic illness, and a lot of it you cant go with out if you were to forget it.schizo

For this holiday, I have taken about two months to prepare everything that I need to take with me- you probably could do it quicker, but I’ve not been well and had to stop driving, so it wasn’t as straight forward as it could be. It has also been a long time for me since I last travelled, so I have been realising new things I need to sort as I have gone along.

The first major thing to sort out is always medication. Most chronic illnesses come alongside an expanse of medication that help you keep symptoms at bay and make basic things tolerable. Now for me, I have a lot of pain medication along with other medication to help with my stomach, sleep and mental health. With certain medications, such as morphine and some antihistamines, you have to have them authenticated by a medical professional. This sounds a lot more complicated than it really is, all you have to do is get a copy of your prescription, a letter from your doctor, and make sure that your medications have the label with your name and pharmacy signature on. I know that I have had to pay for the medical letter than was £20, but otherwise this is all pretty straight forward.

Now it doesn’t matter if you are going to the other side of the world or just to the next town, you always have to think through do you have the extra little things that help you to be comfortable? For me this consists of comfy clothes, supportive shoes, strapping tapes, and probably most importantly, my wheelchair. This time around I have also included a bunch of sterile dressings, I am currently having to use these for some ulcers caused by blood sugar levels. As some one with a lot of allergies I cant use most plasters, so I have to be sure to take everything I might need with me. Last thing I want is to have to try and find a foreign pharmacy and try and find plasters that wont cover me in a rash.

Finally, its just a matter of thinking through how you are going to get yourself and everything you need to the airport and through to the plane. I am lucky that I am travelling with my partner and all of his family, all of whom are very supportive with my disabilities. We are completely prepared (or at least I think we are), and have booked for the added assistance in the airport, so that I can go through security in my wheelchair. Between the eight adults, we should be able to manage the luggage and two children; but having support from those you are traveling with is always a real help- means that although I could self propel the entire time, I should only have to focus on getting myself around.

Although this will be going out too late to help me with this trip, I would love to hear any tips you have for traveling with disability. Do you have anything you find really helps you to prepare and get around?




Why traveling isn’t for me…

Most people my age, and to be fair people in general, always seem to go travel, want to see the world. Have bucket lists for places they want to go, spending their earnings on lavish sight seeing holidays. Bloggers jumping at any opportunity to write blog posts about beautiful places around the world, and showing the world what its like to go on jet setting holidays. schizo

But truly it is just not for me. I am a person who loves their own bed, and my own home, and just generally the feeling of being in my own home. I may be moving, but I will quickly make that my own home and then be most comfortable there.

Most of my childhood, I would have a different holiday each year, and although I used to enjoy them and have great memories, I always had an uncomfortable feeling about it. Part of me always got very anxious, initially just about the flight and  travel, but as I got older I started having the anxious feeling for the entire trip. Getting uncomfortable about the fact I wasn’t cooking the food, that I didn’t know if the room was clean, that I didn’t know the bugs that could be getting around.

To begin with in my childhood, I only really remember it being in foreign countries, but as I’ve got older and been going to different places in the UK, I have noticed that it is with just about any trip that involves staying a night away from home. I have even had the same anxieties about staying at families homes, and even my partners.

I cant help but think that my fear of traveling is a lot to do with my health issues. I am constantly concerned that I will forget something that helps me manage my health conditions, or that I will get ill while I am abroad and feel completely alone in a country I cant speak the language.

That’s not to say that there isn’t a full list of things and places that I don’t really want to see, because trust me there are. If they could just move and turn up on my doorstep, so I could just do a day trip to see the world then that would be perfect. Sadly though, I highly doubt that that is possible.

But sometimes you just have to fight through anxiety in order to keep living your life, and that exactly what I am doing this month. I will do a post this week all about the extra precautions I have to make in order to be able to travel with my disabilities.

Do you enjoy traveling or do you find its just not for you? There is not harm in not loving traveling, it really isn’t for everybody, some people are just more stay at home people.


Recovery Update March’19

Just in case you were missing it, I thought I would give you all a bit of an update of how I’ve been doing with my health recovery since such a rough start to the year. Well, I can tell you now that it has still not been an easy sailing journey.schizo

I am writing this a week before I go on holiday, so I still do not know for sure whether or not I will be being allowed to go. However I will say that it is looking very likely, so keep everything crossed and wish me luck.

So at the beginning of March, just before my birthday, I started feeling really rather rough again. I took to my bed, and just prepared to wait it out, hoping to be better before my birthday and definitely before my holiday. A couple more days and I had to go to the doctor as my fever was getting worse.

Turns out I had the flu, however I had developed bacterial tonsillitis on top of the flu- tempted to not bother with the flu jab next year. Saying that, I should just say that I had an allergic reaction to my flu jab, and have since had the flu twice since the jab- I’ve not had much luck.

To treat that I was put on a ten day course of strong antibiotics to try and kick it out quick. And in the mean time I just have to rest and take it easy, something that for once I am not complaining about. Thankfully I have gotten really into reading again so I am quite happy with an excuse to get through some books.

It is starting to ebb away now, my appetite is coming back slowly, and its getting easier to breath again, all looks good I would say. I might of had to spend my birthday on bed rest, and have to change all the plans, but at least it is looking like I will be able to go away at the end of the month.

As for everything else, I have not passed out now for over a month, and my drop attacks have gone back to pretty much their normal pattern. I have now got my appointment dates through for Cardiology and Urology, and hopefully now it will be clean sailing and no more need for hospitals until then.

That being said, I was diagnosed the other week with pre-diabetes. I was tested for diabetes just to see, as it runs in my family and I’ve been having quite a few issues with wounds not healing. So now I am on a mission to try and both improve my diet and lose some weight over the next twelve months before I get retested.

Finally, my ulcers are finally starting to heal up. Turns out half the reason they weren’t healing is because I am allergic to Iodine, which is what they were using to try and help them to heal while warding off infection. So I can no longer have anything with iodine in, and have now got to use the silver nitrate variant instead, I feel like I’m just getting fancy now. Got to change out my emergency medical kit.

That is it for my health update for today. I’m sure I will do another after my holiday and the consultant appointments, But for now, please keep your fingers crossed that I keep everything together and am allowed to fly at the end of the month.


ABC Book Challenge- Letter B

Its time for round two of the ABC book challenge series, if you missed the first then you can catch up on what its about, where I got the idea and Letter A, here.

Now todays letter is B, so lets see what books come up this week.

Memorable Books I have read beginning with the Letter…

Last year saw a few very memorable books being read, some of which I have the great honour of reviewing on this blog. The first memorable book to mention is A Baby’s Bone by Rebecca Alexander, a super emotional historical thriller genre blend. You can read an extract for it here.38206728

Another thriller on this list is A Breath After Drowning by Alice Blanchard, a chilling who did it, following a psychiatrist having to face her demons to work out who was behind her sisters murder years before. This book really did envelope me into its hold, and I loved the entirety of this book, I need more by Alice Blanchard!! You can read my review here.


Books on my TBR beginning with the Letter…

First book that comes to mind is one that I have had on my shelf for a very long time now. I believe I brought it on a Christmas shopping trip a few years ago, and that book is Burial Rites by Hannah Kent. Still I know little about this, but I think that its about a woman’s experience on death row. 17333319

Finally a book that I got in a FairyLoot box and have been dying to read, Beyond a Darkened Shore by Jessica Leake. All I know about this is that it is a young adult fantasy, but it has had some very mixed reviews from what I have seen. Have you read it? What were your thoughts? 32295486

That’s it for Letter B, join next week for Letter C. You should give this series a go, send me the link if you have.


Thriller Recommendations 2019

Its time again for another post of recommendations, this time around it is all about the thriller books that I think you really must read. All four of these books are amazing, and have stuck in my brain since I first read them.

The first book I want to recommend today is one of my most recent reads, and one that I absolutely adored. After the Eclipse by Fran Dorricott is a thriller novel that was released last month from Titan Books, and kept me gripped to its pages from the beginning to the end. I had the pleasure of being part of the blog tour for this last month, but my views are completely my own, and I would rave about this book even if I hadn’t been on the tour. The concept was so different to anything I’ve read before, and the characters were all so loveable, so if you have picked it up already, go and get yourself a copy. You can read my review here. 42387344

From the same author as one of my other recent reads, comes my next recommendation, The Dry by Jane Harper. Earlier this year, I read her latest novel, The Lost Man, and it was just as fabulous. But I would definitely say you should start off with her first work. The setting of all her books is so unique, set in the Australian out back, these books have an element of suspense to them that I have never found in any other novels. They are perfect to be read in the summer, especially if we have good whether as you can appreciate the surroundings so much more. You can read my review for this book here. 31560399

The next two were two of my favourite books of a few years back, and they have stuck with my ever since.

The Vanishing Year by Kate Moretti is an intense identity based thriller. This was the start of my obsession with this style of thriller novels, still now I am always on the search for new books like this. I read this very quickly, and the benefit you have is that there are now more books. She has since released Blackbird Season and In Her Bones, both of which you can definitely add to your TBR if you love this one. You can read my review for this book here. 31846442

Shortly after discovering Kate Moretti, I had the please of reviewing The Passenger by Liza Lutz. This was another identity based thriller, that I read in no time at all. Following a woman running away from being accused of a crime she didn’t do, and having to start over and try and make a life for herself. I found myself getting very attached to Debra, and that in itself kept me glued to the pages. Once again you can read my review here, and soon she will be releasing her new book, The Swallows. 29451611

So those are the four thriller novels that I have to recommend, but trust me there could be many more. But those will have to wait for another time. Have you got any thriller novels you’d like to recommend? I’m always on the search for more.



Am I an adult yet?

Recently it was my birthday, I am now solidly in my 20s, and apparently that classifies as being an adult. But in reality, I’m still not so sure.

Being an adult is a complex classification in my eyes. As a child, I always pictured being an adult involving living on your own, having a serious job or career, and generally just knowing what you were doing with life. schizo

I can certainly say that I do not know what I’m doing. Okay, so I may know what I want to be doing, but when it comes to adult stuff I always end up having crawl back to my father, or try and work through the mind field that is google.

Fair enough, when it comes to cooking, cleaning and the pure basics of looking after yourself, I can just about get by. But anymore than that and I still rely on my father.

I might be able to do my washing and load the dishwasher, if one of the machines was to go wrong, I wouldn’t have a clue how to fix it. I don’t know how to change a lightbulb, unblock a drain or turn the power back on after a power cut.

A few times lately I have mentioned that I am working towards moving out, and it is just highlighting to me just how much of a child I still am. I had to fill out a how bunch of forms for various things to do with the move the other day, and overall it took me two days. Not because of any other reason than I was having to google or call for help with every other question.

I am determined and nothing is going to stop our plans for moving, we may hit bumps in the road, but we will keep jumping the hurdles, and battling our way forward. But it just proves to me how much it is that I need to learn, and sharpish. When you move you cant afford to mess up a piece of paper work, to fill something out wrong or miss an important piece of information.

As it is we have already had to make corrections to one piece of paperwork at the office, and then go out of our way to drop of further evidence that we forgot to hand in the first time around. But if that is the last the mistakes we make, or at least the worst of them then it is all good. I have confidence that we can get through almost anything, we know what we want, and we know how we want to get there.

So in the mean time I have a few more weeks if not months to work on the adult skills that I need to improve on. I need to learn to be an adult in more ways than just my basic care skills. I pride myself in being responsible and grown up, but I will put my hands up and admit that I am rather naïve in many ways.

Do you class yourself as an adult? What classifies as an adult in your eyes?



ABC Book Challenge- Letter A

Time for something a bit different, and I am really excited. This is the first in a quite a long blog series which will include one post a week for the near on future; we will be going through the alphabet, talking about some of my memorable books, as well as some on my TBR. But each week, they have to start with the letter of the week. I got this idea for this post from Kate over at Book Lover Kate, and you can see one of her entries for it here.

I know that some letters are going to be harder than others, but I would of thought that A would be easy, but typically I’ve drawn up blank.

Memorable Books I have read beginning with the Letter…

One of my favourite books of the year a couple of years ago just has to be mentioned in this, and that it Alice by Christina Henry, you can see the review here. A chilling, spooky new take on the events that occurred after Alice in Wonderland, this is a must read for any fairy tale and horror fans as it really is superb. 30196357

Then one of my most recent reads, After the Eclipse by Fran Dorricott is another fabulous book that earnt a four star rating from me. You can see the review here. This is a recent release, but is another book that any and all thriller fans just have to get their hands on. 42387344

Books on my TBR beginning with the Letter…

Coming out later on this year, in May I believe, is one of my most anticipated books Aurora Rising by Jay Kristoff and Aime Kaufman. I’m counting this as being on my TBR, as lets be honest, I already have it pre-ordered, so that counts. This is another Sci-fi book by this amazing duo, and it is bound to be amazing. 30075662

Then finally, my only graphic novel on this post, Adulthood is a Myth by Sarah Andersen is a quirky looking, funny graphic novel all about the truth of being an adult. Or at least what it feels like to be an adulthood. I have wanted to read this for ages, I just hate how expensive graphic novels always are. I would love to know your thoughts if you have read it. 25855506

So that’s it for letter A, check back next week for letter B, and feel free to jump on the idea and give it a go. Its a really fun post to write and definitely has gotten me in the moo to read.